Integrating patient-reported outcomes in routine clinical practice

Free webinar: Jan. 26, 4 - 5pm EST

Research in Patient-Reported Outcomes (PRO) measures has progressed a lot in the last 20 years.  The use of PRO measures has become widespread with researchers seeking to understand the impact of disease and its treatment on patients.  However, researchers and clinicians have struggled to keep pace with developments in the field and still commonly use traditional methods such as summary scoring which does not enable valid interval scoring.

This webinar will present a newer methodology (based on the latest science about PRO-measure usage) that improves the collection and assessment of PRO data. The webinar will explore the scientific principles behind PRO measurement, its application in clinical practice and its evolution and future.

After attending this webinar:

• Clinicians will have a better understanding of how to collect PRO outcome data using a new methodology designed to enable the data to be used in research.
• Researchers will learn more about what the PRO outcomes data represent and how to use it in their research.

 This webinar is provided at no charge. A Certificate of Attendance will be provided to all attendees.

Register for the webinar

Speakers

PRO measurement in routine clinical practice — a Save Sight Keratoconus Registry experience 
Stephanie Watson, Bsc(Med), MBBS, PhD, FRANZCO
Save Sight Institute Faculty of Medicine and Health
The University of Sydney, Australia

Stephanie Watson is a clinician scientist appointed at the University of Sydney and Sydney Eye, Sydney Children's and Prince of Wales Hospitals. Known for her ground-breaking research in corneal therapies, she has over 106 publications, is invited to speak internationally and has raised over $10 million for her research programme. Data from Watson’s research has featured widely in Australian and international media, including in the New York Times, a Sydney Morning Herald article with reach of over 8.3 million and the film Vitamania. She contributes to policy as chair, Ophthalmic Research Institute of Australia, chair elect to ARVO's Advocacy and Outreach Committee, expert advisor to the $150M Stem Cell Therapies Mission, editor for the Cochrane Eyes and Vision Group and NSW representative, ANZ Cornea Society. Watson was awarded the NSW Premier’s Prize for Leadership in Innovation, RANZCO Council lecture, first prize Medical Device Commercialization Training Program, ATP Innovations/NSW Office for Health and Medical Research and nominated for NSW Women of the Year and a Pride of Australia award. She also led her team to win the Best Health Innovation Product Idea, IDE group. 

Scientific principles behind PRO measurement 
Himal Kandel, PhD
Save Sight Institute Faculty of Medicine and Health
The University of Sydney, Australia

Himal Kandel is currently working as the Kornhauser Research Associate at the Save Sight Institute, Faculty of Medicine and Health, the University of Sydney. As a postdoctoral researcher, his roles include analysing the patient-reported (PRO)data using the advanced psychometric methods including Rasch analysis. Kandel has published widely on the validation and use of PRO measures. His PhD project at Flinders University, Australia developed novel ‘item-banks’ — the latest generation patient-reported outcome measures for measuring quality-of-life in refractive error — for which he was awarded the Vice-Chancellor’s Prize for Doctoral Thesis Excellence. Kandel’s research has focused on measuring and improving clinical and patient-reported outcomes in refractive error, keratoconus and other eye conditions. His research has been recognized by several awards, including the 2018 South Australian International Student of the Year. Kandel has an MSc Public Health for Eye Care qualification from the London School of Hygiene and Tropical Medicine, UK, and his research interests include epidemiological and inter-disciplinary researchas well. 

Recent advances and future of PRO measurement in ophthalmology 
Konrad Pesudovs PhD, FARVO
School of Optometry and Vision Science
University of New South Wales, Australia

Konrad Pesudovs is a world-renowned PRO researcher who has developed numerous PRO measures in ophthalmology. He is the chief investigator of the ‘Eye-tem Bank project’ which is developing the third generation (latest generation) PRO measures for all eye diseases. Pesudovs undertook clinical training at Melbourne (1990), PhD at Flinders University (2000) and postdoctoral Fellowships at Bradford (UK) and Houston, Tex. (USA).From 2004-2009 he ran the NHMRC Centre for Ophthalmology Outcomes Research at Flinders University. From 2009-2017 he was the Foundation Chair of Optometry and Vision Science at Flinders University. In this role, he created a five-year optometry course incorporating innovative teaching and learning strategies including integrated teaching, case-based learning and other student-centred learning strategies, e-learning, communication skills, business skills, evidence-based practice, simulation, high volume clinical exposure, clinical placements using the parallel clinical consulting model and regional, remote and indigenous student recruitment and training strategies. Since 2019 he has been SHARP (Strategic Hires and Retention Program) Professor in Optometry and Vision Science at the University of New South Wales. His research interest is ophthalmology outcomes research, incorporating optical, visual and patient-reported measurement into the holistic assessment of ophthalmic outcomes. A key element of this is the development of patient-reported outcome measures using Rasch analysis. He is the leader of an international project to develop item banking for measuring patient-reported outcomes in ophthalmology (the Eye-tem Bank project). He has a strong track record in epidemiology, particularly with the Global Burden of Disease Study. He has published over 250 peer-reviewed papers (h-index 63(ISI)) and made over 200 presentations at international conferences. His career grant funding exceeds $9M. He sits on three editorial boards and was president of the Australian College of Optometry (2016-2020). Pesudovs has won several international awards including the Waring Medal (2006), the Borish Award (2008), the Garland Clay Award (2009, 2011), International Optometrist of the Year (2018) and the H Barry Collin Medal (2020).